Life More Abundantly

John 10:10 says, "I have come that they might have life, and life more abundantly."  I have to say, for almost five years, that verse seemed so far away from my reality.  We were struggling financially, struggling with our health, struggling to maintain a marriage when we barely had any time together.  In the middle of it, it all seemed insurmountable.  But now, looking back, I can see so many places where God was working... working on Derek, working on me, working on us.  We have not arrived yet, but we are beginning to see manifestation of God's plan for us.  It is an exciting, beautiful time.  I want to make note of that here, so that in the future, I can look back and say "Yes, I saw the beginnings of this way back then."

With Hope

Grief.  That thing we feel when someone dear to us, steps into eternity.  That empty, hollow, overflowing feeling.  The way the world looks gray and dull when picturing it without our loved one there.  Most of us know the ache of waking that first morning, knowing it's your first full day without him or her.  Most of us know what it is to stand there in the cemetery, waiting for them to lower someone precious into the ground for a final time. 

But not all of us know hope.  Not all of us believe in heaven and eternal life.  That is the part I don't understand.  How does a person who has no hope, grieve and then move on?  Where do they draw their strength from?  How do they reconcile the death with the eternal nature of our spirits - something we know deep inside regardless of creed?

I believe in eternity.  I believe in Heaven.  I believe that my daughter and my other children are all there waiting for me.  I believe my Gramma is there, and that as we always talked about when I was growing up, she will meet me at the Eastern Gate.  I believe my great-grandpa Max is there.  My great-uncle Elmer.  My brother.

And it fills me with hope and anticipation.  The day is coming when I'll be reunited with them all, and I will never have to say goodbye again.

So I grieve, but with hope.

In My Dreams

During the day, I miss her.  My Gramma, that is.  I miss her every day.  I miss her when something is beautiful, I miss her when things get ugly.  I miss her when I smile and when I cry, and when I do well and when I fail.  When I feel like I am soaring high and when the weight of the world is crushing me, I miss her.

Growing up, she was part of every day.  Most of what I did, she was there and she was in the middle of.  I never really learned to let go of that.  The last time Derek and I drove away from their home, I said to remember and treasure that image, as it wouldn't last.  I had the idea that something was about to change, but I didn't really know at all.

I never would have guessed she was to be taken so abruptly from this world.  To think that a driver's carelessness would be the thing responsible for such a staggering loss... I just wouldn't have done it.  That's what happens to other people, not to me.  Not to her.  But despite being willing to give up everything to go back and change it somehow, with chilling finality, she was killed that day.

She's not dead though - not spiritually.  I know she lives and is rejoicing and dancing in heaven.  But until I join her there, she's gone from my world.  She can't tell me who to love or what to do or how to be, no matter how desperately I wish for her wisdom. 

But at night when I dream, I don't know that.  When I dream, she is alive and present.  Usually, in the dreams, I know she is dead and I know she can't be there... and yet, there she is.  She laughs and smiles and speaks, and we all act like it's perfectly natural for her to be doing those things.  I wish dream-hugs lasted after waking.  I wish I could retain that sense of wholeness and safety after sleep stops for the day.  Some mornings, I let myself sleep through my alarm just so I can have a little longer with her.

But in my dreams is just that... in my dreams.

The reality of it all is, the pain is real.  The alone is real.  The sadness and the lingering sense of shock and disbelief and the empty feelings... they are all real.  Even more real, though, is the fact that this isn't going to last forever.  I'll see her again, and it will be a forever reunion.  It's going to be the end of the pain, the end of the nightmares, the end of the loneliness.  THAT is the reality I try my hardest to focus on.

And in my dreams... in my dreams, I let myself have a reminder that this situation isn't exactly as it appears.

It Makes Me Ache For Heaven

A lot of the time, I'm really genuinely grateful for my earthly life.  I like it.  It's beautiful.  Some times, my attitude isn't so good.  Always, I know that my life is a gift - as is every life. 

And some lives.... some lives have touched me in a way that makes me ache for heaven.  In a way that changes my decisions because I think, "No, I have to make it.  I have to see this person again."  I know my motivation for following God is supposed to not just be about what I'll get out of it, but if I am being genuinely honest... sometimes, it is.  Sometimes all I have left is what I know will happen when I get where I'm going.

And seeing Jim... means more to me than I'd have ever imagined it would.  It's a big, important deal.  Just having the hope of seeing him again, is enough to change my actions sometimes.  He's not the only person I miss... but today, he is the one I miss the most. 

It's been a year.  It feels like forever has passed and it feels as fresh as if it was yesterday.

Tonight I pause to remember not one of the Better Men, but one of the Best Men.

Your Walk Talks

Growing up, I had an outstanding youth group leader, Mr. Jay.  He had this way about him... we played games and went hiking and had adventures, and we also would sit in the study at the church and discuss the really deep issues in life.  He took a group of kids who would never have been a group by choice, and knitted us together into something beautiful.

One of the things he used to say was this:

"Your walk talks, and your talk talks, but your walk talks louder than your talk talks."

In other words... yeah, what you say matters.  It gets through to people.  But not to nearly the degree that what you DO gets through.

I was laying on the couch this afternoon thinking, and that's what kept coming back to mind.  I know for me personally, my walk and my talk don't always line up.  I send mixed messages, even though I'd rather not. 

What areas of your life do you need to examine and sort out?  What things do you need to answer once and for all, so that your walk and your talk are saying the same thing?  Just one little phrase that stuck in my head (and I'd bet lots of other teenagers heard him say it and let it stick in their heads too), that gets to me every time I let it.

What I Am Proudest Of

This is what I am proudest of.  Out of every thing God has given me the ability to do, everything I have accomplished, every drop of sweat and blood and every tear, nothing has meant as much to me as this. 

When I was twelve, I was just a scrawny, insecure, abused little girl with no hope and no concept of "future."  All I had was the present, and the present was nothing I wanted.  But one afternoon, my dad came home from his new job and handed me a newsletter put out by a local hospital.  He said "read the class list - see if there is anything in there that you would like to do together."  My eyes landed on "Karate for adults and children aged eight and up.  Maximum 25 students."  Dad and I made 23.  All of us white belts, with one lone black belt as the instructor.  That man became first an instructor and then a mentor and then my doctor and then my friend, as years passed.  And it turned out not to be Karate - it was Tae Kwan Do, but with some Judo and Hapkido mixed in. 

At our school, earning a black belt is no easy feat.  It takes years, and it takes everything you have to give - and then more.  At age twelve, I saw that and suddenly, I had something in my future.  Something I wanted - needed even.  Something that I could do. I knew I could.  It literally changed everything about who I was.  Not dramatically, especially at first.  But a subtle shift from hopeless to hopeful, from lost to found, from broken to healed. 

There has not been a day since, that I have questioned whether God used martial arts to save my life.  He did.  He still is. 

And that is why this is what I am proudest of.

Where Honor Lives

July 4th, in our nation, is a special day.

We celebrate freedom.  Families gather, we eat food that tastes yummy but probably isn't so good for us, we spend time laughing and running barefoot through the yard.  Together.  Then we gather to watch various substances that have been crammed into little vessels get flung into the air where they explode in bursts of color and light.

And it's all very nice.

But it's not what is inside me on this day.  Today I don't think about exuberant displays of freedom.  I don't think about living in a country that has so many little "perks" that we are forced to complain about the little stuff because the "big stuff" just isn't a present problem here. 

I think about honor.

In my head, I think about Independence Day when I was maybe ten or twelve.  My best friend and I were with my grandparents on their boat, watching the fireworks display surrounded by other boats as we floated in the Mississippi.  The light and sound from the fireworks was bouncing off the bluffs that surrounded us.  It was loud and bright and you could feel the energy in the air.  Excitement and exhilaration.

I looked down from my perch, with my legs dangling high above the water and my arms resting on the rail around the roof of the boat.  There was a small bass boat tied to our boat - nobody we knew.  But for the first time in the hours we'd spent so close together, I looked at them.  A young boy - maybe five years old.  His little life jacket stood out against the dark floor of the boat where he sat, leaning on the legs of an older man.  He was probably seventy, maybe more.  He wore a navy blue shirt and his gray hair was thinning.  His face had "the look" - you know, the expression that says "I love my life, I love who I am with, and this moment is beautiful" at the same time it says "I have seen and heard and lived through things most of the world can't even imagine.  I have seen the darkest parts of the world."  And I could see in his eyes, that the darkness he had seen was what let him really appreciate the light around him now.

Usually, after the pyrotechnics are completed, it is a rush to get every boat started and compete to be the first to leave that stretch of river.  But before that rush starts, there is always about two minutes of silence, where people are waiting to see if it is really over.  And that night, the silence was pierced after about thirty seconds.  Somewhere in the darkness, on a boat or perhaps standing somewhere on shore, two people had and played bagpipes.  The familiar sound of our national anthem was almost haunting as it rolled and echoed across the water.  Most people silently stayed where they were; unsure whether they should respond or not.  But the old man in the boat next to ours?  He stood tall and straight, his hand raised in a sharp solute, eyes fixed on the flag displayed on the front of our boat.  In that moment, I saw honor alive and well in him.  But it doesn't end there.  The small boy was almost asleep in the bottom of the boat.  He watched the man stand, watched him solute, and struggled to his feet.  He did his best to emulate the man he clearly admired; feet together, knobby little-boy knees straight, shoulders back, and his best attempt at a solute. 

As the anthem faded away, some people started to move.  And then slowly, softly, the first strains of Amazing Grace floated through the darkness.  The man continued staring at our flag as tears rolled down his face.  The young boy looked up at him, and then took his hand.

"Gwampah, I wuv you.  I wepect you.  Fank you for pwotecting us.  I wemembew.  And I wemembew yoah fwends too.  I won't evah fowget."

And that, my friends, is where honor lives.  In the heart of the child who saw, recognized, and embraced that which was worth honoring.

What If?

It seems like the longer I live, the more chances I get to ask myself "What if?"

What if June 1, 2006 had gone differently?  What if that ultrasound had shown a healthy, living fourteen week baby?  What if my deep-rooted fear and sinking feeling had been unfounded?

I'd have a child now; she'd be about five and a half.  I'd be thanking God for the time with her and mourning how quickly it had passed.  And she'd have had five and a half years of experiences to shape her into who she is. 

Instead, my baby went to heaven before I got to meet her.  Instead, my husband and I saw that still, silent ultrasound and spent the next day begging and praying and trying to hope that things weren't as they seemed.  Instead, we chose her name with tears and longing.  Instead, we watched her due date come and go and our arms stayed achingly empty.

What if on January 31, 2007 I had let my Gramma stay at my house to take care of me after my knee surgery?  What if she had not been in the van during that crash?  What if the van hadn't been there?  What if the driver of that milk truck hadn't chosen to use his cell phone?  What if the road crews had done a better job of spreading salt on that particular stretch?

Would that mean that today, I'd be able to ask my Gramma how to love my dying friend?  Would it mean that I'd have someone to give me the push I need to love without reservation?  Would it mean I'd have fewer nights filled with empty, silent tears?  Would my heart hurt a little less?

What if I had chosen to ignore the growing attachment and attraction I felt toward Derek nine years ago?

I'd have loved and perhaps married someone else.  And I'd have missed out on so much.  I'd have missed the laughter and the joy and the tender moments.  I'd have missed the frustration and fear and uncertainty.  I'd never have stood in disbelief as I watched my new relatives dance in a circle to weird Greek music.  I wouldn't have found myself having to choose between what I wanted and what was right as I responded to certain situations.  I wouldn't be laying on the couch with my leg in the air, knowing that tonight my husband will come home and I will be proud of how well he did today as he works a job that he is not "naturally gifted" to do.

What if in September of 1999, the person visiting me in the hospital had simply said "That is sad and I am sorry" when I told him I had to find a new home?  What if his wife had said she didn't want to start again with yet another teenager?  What if my dad hadn't been agreeable?  What if the doctors had said no?

I wouldn't have learned to love.  I wouldn't have learned to laugh, or to trust, or to be honest.  I wouldn't have experienced unconditional acceptance into a family that loved me just because they wanted to.  I wouldn't have had the foundation I needed to go out into the world and build a life.  And truthfully, I probably wouldn't have survived.

What if my childhood had been easier?  What if I'd never been betrayed, abandoned, or abused?  What if I hadn't survived things that are almost unspeakable?

I would have been closer to "normal."  I wouldn't have been living with PTSD for as long as I can remember.  I would have had less fear, less anger, less pain.  I wouldn't have had to be as strong or as brave.  I wouldn't have learned to lie about everything.  I could have "just been me."  But I wouldn't have had a reason to develop the compassion I have today.  I wouldn't have such a personal motivation to drive so much of what I do.  I wouldn't know how profoundly forgiveness changes a person.  I would never have seen the amazing transformation that happens when someone literally turns from evil and surrenders to Christ.  I probably wouldn't be as accepting of others and I am certain that I'd have less wisdom, less strength, and less hope. 

I could go on, and on, and on.  Because there are hundreds, no, thousands, of "what ifs" in my life.  In every life.  There are so many things that change the course of our lives from that moment on.  Sometimes, we get the better option.  Sometimes, we don't.  Always, we can choose to look back and ask "What if?"  Sometimes, doing so can help us.  It can give us insight, it can give us wisdom, help us make better choices in the future.  It can give us a chance to be grateful and an opportunity to embrace peace and acceptance.  But it can also hurt us.  It can make us regret things we cannot change.  It can make us grieve, it can make us angry and uncertain and afraid.  We can look back and feel slighted and compel us to make decisions that are hurtful to us now.

I have one final "what if" that I would like to ask.  One question that I think we all need to answer for ourselves, in our own hearts and minds.  One thing that needs to be settled permanently within each of us.

What if I choose to look back at my life from time to time, and ask myself how things could have been different, and then I take that perspective and use it to answer the 'what ifs' that face me every day, so that I can face tomorrow without regret?

Leg Time

1st Peter 2:24:
Who His own self [meaning Christ] bore our sins in His own body on the cross, so that we, being dead to sin, should live righteously:  By His stripes you were healed.

Healed.  It is with joy and excitement and hope and thanksgiving that I speak that word.  Healed.

For years, I attacked my own body.  I kept it hidden from most of the world, but not from the doctors who worked so hard to help me heal from those attacks.  I received compassionate, skilled medical care; many who admit to self injury are not so fortunate.

But medicine and time can only heal so much.

My right leg has been hurt quite badly, many times.  A few years back, it caught up to me.  Requiring yet another set of sutures landed me in the hospital.  Hospitals are good places to go if you are sick.  Hospitals are also good places to go if one wishes to be exposed to a plethora of hurtful bacteria.  My leg got infected, and for the first time in my life, the medical care I received was sub-par.  It festered and deteriorated for months before I had the first of too many emergency procedures.  At that time, it was found that the years of injury had caused significant vascular impairment.  In other words, you can only wreck so many arteries (big and small) before your foot simply doesn't get enough blood.  Because of the circulation problems and the effects of stress on my immune system and the unfortunate combination of resistant bacteria, it has been a rocky road since then.  I have spent more days either in a walking boot or on crutches, than I have spent walking normally.  I've got very limited sensation.  Lasting muscle weakness.  Pain, all the time.  And when stuff happens - little stuff, like a scuff on my heal from the stairs or a scratch from one of the cats - it doesn't heal like it should.  It can't. 

Last fall, things cascaded downhill really quickly. 

I am proud to say, though, that I have not done anything to deliberately harm myself in any way since the beginning of 2010.  I've been taking care of my body; seeing it as a gift from God.  It has been a fight.  A difficult, frustrating fight that has been worth it every second of the way. 

But it is in my medical record that I used to hurt myself, deliberately.  Every time a professional has entered the picture to try to help with my leg, it has been assumed b y them that I am still doing things to hurt myself.  It's led to ineffective and unprofessional treatment.

I am now three months into a process of trying to heal the ulcers that broke through the surface of my skin graft and proceeded to worsen and deepen for weeks as wound care specialists treated me for infection.  Infection that isn't present.  And it has been three and a half weeks of daily (yes, every day) appointments with my family doctor.  Three and a half weeks of finally having someone acknowledge that this is not something within my control, and it is not something I have caused.  Three and a half weeks of compassion and the best medical care that my doctor and the nurses working with him can provide. 
And healing is happening.  All the fancy solutions and ointments have been abandoned in favor of simplicity.  Pain relief has been not only provided but encouraged.  Nobody is wasting time trying to place blame.  And the wound that physically should not be able to do so, is healing.  Rapidly and well.  Skin is growing where skin can't grow.  I am completely without signs of systemic infection, and there is also no evidence of bacterial colonization.  Some of the defects that were present even after reconstruction and grafting surgeries have been filled in with healthy tissue.

It is nothing short of amazing.  Even miraculous.

And instead of a future full of continuous appointments and frustration and pain, there is an end in sight.  The day is not so far off when I will be able to leave the clinic and know that I don't have to go back any time soon.  Don't get me wrong; my doctor and the nurses and even the receptionists are wonderful people.  People I care about, people who are uplifting and kind, who are the sort of people I would choose to spend time with simply for the sake of their company.  It's just that the daily appointments, the constant need for said appointments, and the amount of energy, time, and attention being devoted to me, feels suffocating.  I'm the sort of person that prefers to fly under the radar.  Solitude doesn't feel lonely to me - it feels peaceful.  There are times when I am not sure what I look forward to more - being healed or the simple reality of not needing and not receiving this sort of intervention every day. 

Eventually though, I will be well enough to just pack a bag and go stay with my dad and family without having to worry about making it to my next appointment.  Eventually, my time and energy will be put into something more, something better.  Eventually, I  won't require so much as an Advil or Tylenol for pain relief, let alone narcotics.  Eventually, I'll walk into that clinic on two feet with no crutches in my hands, and I will undergo the recommended yearly physical exam, and there won't be any problems.  I'll smile at the nice people and walk back out the door.

There Are Days

Ten years ago (well, nine years and eleven and a half months), I graduated from high school.  I remember sitting in the second row of chairs, surrounded by people I'd spent most of my life knowing.  I remember looking around me and seeing how easy they had it.  How simple and enjoyable and effortless their lives were.  How beautiful they were.  How little they struggled and how seldom they had to fight.  I stared briefly at every face.

And I remember them.

But the last ten years have taught me something.  They didn't have it easy.  Their lives weren't necessarily any simpler than mine.  They didn't have a unequal share of happiness.  And they fought.  They grew up with one parent, they were abused, they had eating disorders and were addicted to drugs and self harm.  But they fought.  And because they fought, they got to keep going.  They got to build lives and families and careers.  They got to develop strength and faith and wisdom. 

I see those things reflected in them now.

And I see them reflected in me now.  I'm thankful.  I'm thankful for the lessons and for the joy and for the beauty and for the relationships I've had since that day.  Sometimes, I get overwhelmed by the negatives though.  On mother's day, I let that happen.  It was an empty, heavy day.  I found my thoughts constantly focusing on one thing:  my Gramma, who was the closest thing I had to a mother growing up, is in heaven.  My babies are there too, and I've never met them.  And my mom?  There's an ocean of time and emotional distance between us.  I miss her, always.  She's sick; each night when I am trying to fall asleep, I inevitably find myself thinking about the fact that I don't know if I'll ever see her again.

I let myself focus on that, and it pulled me down. 

This week has felt like swimming through quick sand.  My physical energy is depleted.  Emotionally I've been on edge.  Mentally, my thoughts are jumpy and disconnected.  And each day has gotten just a little harder.

Those things have combined with the reappearance of pain and other symptoms from endometriosis to create days like today.  Days when I'm just... unwell.  Unwell enough to lack the strength even to sit upright.  Unwell enough that I can't focus to follow the plot in the book I'm trying to read.  Unwell enough that my body temperature is up and my blood pressure is down.  Unwell enough that lab work is coming back abnormal.

There are days like that in every one's life, as far as I can tell. 

And as far as I can tell, the only thing I can really do about it, is to rest.  So that is what I am doing.  I am resting.  I want to be with people, to do things, to "be productive."  But there are days when that seems to be too much to ask.

There are certain truths that keep rolling through my head and heart though.

Cast all your cares on Him, for He cares about you.

Come to Me all who are heavy laden, and I will give you rest.  For my yoke is easy and my burden is light.

He leads me beside still waters.  He restores my soul.

Fear not.

Fully God, fully man.  He has done it all, lived through it all, faced it all.  Perfectly.  I don't have to be perfect, because He already was and still is.  And that is why I can have faith and hope.

Even though there are days...

There's This Song

And for the last five and a half weeks, it has been intermittently true.  There is someone in my life who some say, I should not love.  Some say, I should not care.  But I do, and I always will.  And that someone... is sick.   Really sick.  And for a few different reasons, I cannot be there.  I think maybe it looks like I don't want to be there.  Or like I am not comprehending the seriousness of what is happening.  Or like I am just... choosing to be absent.  And I think that is maybe giving, to some people, the impression that I don't care. 

Couldn't be further from the truth.

Being here is okay, most of the time.  But there are moments, every day, when it feels like it is tearing me into pieces.  Moments when I think of this person and I literally cannot breathe.  I think of the pain that is being endured and the battles being fought and lost, and I find myself wondering where this could all go.  In my heart, deep down, I have a pretty good idea, and I don't like it.

So if you see me and there are tears streaming down my face or I look tired or pale; or if you think I am avoiding you or neglecting relationships... that it isn't about you, nor is it even really about me.  It is about someone I love and miss deeply and fear greatly for.

This song is performed/recorded by LifeHouse. 
Lyrics are (C) State One Songs America

Broken
The broken clock is a comfort
It helps me sleep tonight
Maybe it can stop tomorrow
From stealing all my time

And I am here still waiting
Though I still have my doubts
I am damaged at best
Like you've already figured out
I'm falling apart
I'm barley breathing
With a broken heart
That's still beating
In the pain
There is healing
In your name
I find meaning
So I'm holding on
I'm holding on
I'm holding on
I'm barely holding on to you
The broken locks were a warning
You got inside my head
I tried my best to be guarded
I'm an open book instead
And I still see your reflection
Inside of my eyesThat are looking for purpose
They're still looking for life

I'm falling apart
I'm barely breathing
With a broken heart
That's still beating
In the pain
(In the pain)
Is there healing?
In your name
(In your name)
I find meaning
So I'm holding on
(I'm still holding)
I'm holding on
(I'm still holding)
I'm holding on
(I'm still holding)
I'm barely holding on to you

I'm hanging on another day
Just to see what you will throw my way
And I'm hanging on to the words you say
You said that I will be okay

Broken lights on the freeway
Left me here alone
I may have lost my way now
I haven't forgotten my way home

I'm falling apart
I'm barely breathing
With a broken heart
That's still beating

In the pain
(In the pain)
There is healing
In your name
(In your name)
I find meaning

So I'm holding on
(I'm still holding)
I'm holding on
(I'm still holding)
I'm holding on
(I'm still holding)

I'm barely holding on to you

Random Things

In the 23 days since I last wrote, it feels like everything has changed.  And also like nothing has changed.

Most of my writing and "sorting" has been done in my journal.  My paper and glue, use-a-pen journal.  Rather than try to recap all of it, I'd prefer to just... share.  A little bit of two of the entries.  Enough to show you what's been on my heart, enough to illuminate the struggle and the fight and to show you that even in those things, there is beauty.

---

God,
I need you.  I need you to consume me like a fire, burning away everything that can be destroyed.  I need you to change my heart and renew my mind according to Your will.  My own will is sinful and imperfect.  I love with hesitation and with impurity.  I speak lies with ease and I am afraid of the truth.  But part of me still wants to bend to your will.  My soul is weak and my body is dying, but my spirit is alive and cries out for You.  So fill me, change me, consume me.  Rewrite my script, and make yourself the primary role.

Save me, oh God, and I will be saved for all eternity.

"I Have Eternal Life"
Truly, truly, I say to you:  Whoever hears my Word and believes Him who sent Me has eternal life. 
~1John 5:24a

---

I need to go home.  To my family, to my Father, to my church.  I miss God.  I miss His Word.  I miss His love.  I miss His Presence.  And I miss my Pastor.  I miss his influence in my life.  I miss his protection.  God gives us so many people for so many things... but He only gives us one Pastor.  If something happens that makes it impossible for that Pastor to keep being our Pastor, God can give us another.  But it's not a matter of simple choice.  It's a matter of necessity and a gift born of love.

I have so much I am hiding.  So much shame.  But my Pastor loves me.  He really does.  He always will.  He loves me as a daughter.  And the pain of not being under his care, of not having a leader in my life, of choosing to walk away from that gift, is shredding my heart.

Today, I realized something.  If any of the kids in my class came to me, after being gone - regardless of how long they'd been gone or why they left or what they'd done while they were away - even if the things they'd said or done were so horrible that they hurt the deepest parts of me - I would run to them with open arms and hold them and tell them I never stopped loving them.  And my Pastor is better at love than I am.  So it is time to go home.

Lord, help me and give me the courage and strength that I need to do this.

Swearing In

In court, if you are part of an actual trial and you have to testify, they have a procedure in which you are "sworn in."  Once you have done that, you are committed to telling the truth, the whole truth, and nothing but the truth.

So help me, God.

I am swearing in, here. 

And it scares me.  I've always maintained a certain amount of detachment, freedom, from this blog.  That won't change.  But I also have frequently hidden behind "this is not for public knowledge" to avoid telling the whole truth about situations.

This post is months in the making, folks.  That's weird for me.  And different.

But the phrase at the top of my blog talks not just about being living proof, and not just about carrying light into the darkness.  It talks about the truth giving light.  And the truth is, there are ways to maintain privacy and anonymity without concealing that truth.

The truth is, I have been in a tooth-and-nail, knock-down-and-drag-em-out fight for my life.  In November, that fight had a temporary time out, as I was too sick do any more than lay in a hospital bed being filled with medication and connected to lines and tubes and having lots of surgery.  But I've healed well physically, and I'm back in the fight full force.  And I claim here to be honest, I claim to want to use my life, both the good and bad parts, to touch others and minister to them, and show them how God can do so much to help them.

And it's been clear for some time now that accomplishing that means telling the truth.

The truth is, my fight is the sort of fight that Ephesians 6 talks about.
And that about wraps it up. God is strong, and he wants you strong. So take everything the Master has set out for you, well-made weapons of the best materials. And put them to use so you will be able to stand up to everything the Devil throws your way. This is no afternoon athletic contest that we'll walk away from and forget about in a couple of hours. This is for keeps, a life-or-death fight to the finish against the Devil and all his angels.
Be prepared. You're up against far more than you can handle on your own. Take all the help you can get, every weapon God has issued, so that when it's all over but the shouting you'll still be on your feet. Truth, righteousness, peace, faith, and salvation are more than words. Learn how to apply them. You'll need them throughout your life. God's Word is an indispensable weapon. In the same way, prayer is essential in this ongoing warfare. Pray hard and long.  (MSG)

If the things I am fighting, were things I could fight on my own, then I wouldn't need God.  I wouldn't be leaning completely on Him.  I wouldn't be entirely dependent on Him to just get through the day.  I wouldn't need a supernatural boost to walk out my back door and try to face life.

When my daughter went to heaven, I thought I was truly and entirely broken and dependent on my God.  And then my Grandma was killed, and I realized I had never known dependence before.  And then, something changed.

The past I had been fighting so fiercely to hide from everyone who loves me, started leaking out.  A little bit at a time, the truth started to spill out.  Tiny bits at a time were revealed first to my husband, and then to my Pastor.  My husband, didn't know what to do.  He didn't know what words to use or what he should feel or what I needed... and he didn't know what he needed either.  Our Pastor, wasn't lost.  He wasn't overwhelmed.  He wasn't confused. 

And he wasn't surprised.  Through a series of meetings and pre-meeting letters, I shared more of my past with him than I'd shared with anyone.  And I was amazed.  It didn't hurt him.  It didn't hurt me.  It didn't cause a cascade of terrible events.  And it didn't change the way my Pastor treated me or my husband.  He continued to show us God.  And His love.  And for the first time in my life, I thought maybe I didn't have to hide the truth.  I thought maybe I could actually tell it and still be okay. 

The first counselor I saw was a good man.  I do mean that - he was good.  He was kind and compassionate and loved God and assured me that my Pastor was right when he told me that this counselor would understand and help without any need for me to feel out of place or ashamed.  But... he didn't seem quite strong enough to handle the things I told him.  I started... tentatively.  I shared just a little bit at a time, things that I knew were more... average.  Things I went through that I assumed lots of others had gone through as well.  And those first admissions were received with compassion and gentleness and support, which is what I needed.  He reminded me often to lean on God and to let my faith carry me.  Which would have been fine, but the things I was not saying, make faith and trust so very difficult.  And terrifying.  And I was convinced he was not strong enough to handle it if I were to tell him the things I still had bottled up.

He eventually decided to ask another counselor for help, to attempt doing EMDR

Flashbacks and nightmares and almost every symptom associated with PTSD took over my life.  Each day seemed longer and harder than the day before.  I couldn't eat - on a good day I would manage an entire tangerine and a handful of goldfish crackers.  Most days, it was less than that.  Anything more and I would vomit uncontrollably.  It wasn't an eating disorder; it was fear and anxiety and depression taking over my body.  Out of desperation, I turned to the only thing that had ever overcome the memories in the past.  I started cutting myself, deeper and more extensively than ever before.  With that came dishonesty and shame and constant fear that the wrong people would find out.

My self-destructive spiral landed me in the hospital.  It saved my life; I would never say otherwise.  But I was repeatedly reminded that I was there for crisis intervention.  My past was not appropriate subject matter for any of the counseling services received there.  A close friend visited daily and became the only person I could share the memories with.  Slowly, painfully, they came out.  Not all and not even most.  But some, a little at a time.

The counselor I started seeing after being released was different than anyone who had tried to help me, ever.  The first thing I noticed was that he was strong.  And intelligent.  Painfully blunt, which is what I crave in communication.  He was and is in many ways similar to my Pastor; the difference was, I actually care what my Pastor thinks and feels about and toward me.  The counselor, was only a counselor.  I had no fear or shame in revealing what was really happening, because there was no pre-existing connection.  He was in my life for one purpose and only one.  And that was what I needed most.

Since then, it has been two years.  Those two years have been spent in this battle I talk of.  I am overcoming a past that belongs in one of those horror films that is too bizarre to be believable.  A past that consisted of polar opposites in almost every arena.  The things that were done to me, the things I saw and heard, the people in my life, all seemed to be either very, very evil or very, very good. 

I was hurt.  When I was a child, a very, very young child, I was hurt.  I was abandoned and neglected and abused physically, emotionally, sexually, and spiritually.  As I grew, I had two worlds.  The world of good parenting and love and loving God and doing healthy things, and the world of abuse and shame and pretending to worship something distinctly not God.  Harming myself was my way to bring back reality on days when it all became too confusing.  It is something I started doing in kindergarten - maybe earlier, but I still clearly remember the first time I chose it as a way to turn off the images playing through my head.  It was the one thing, other than my body, that was part of both worlds I knew.

The abuse continued for years.  It was horrific and graphic and nearly destroyed my spirit, soul, and body.  I am not sharing details here, not because it's "not for public consumption" but because when it comes to sharing, they aren't needed.  It's not the specific events or even the people involved that make living today so hard.  It's what those things did to shape my thoughts and my beliefs and the way it impacted my body.  It's the fear and anxiety and flashbacks and disconnects and the random things that trigger terror and anger and specific thoughts.  And it's the way it interferes with my faith and my beliefs and the way I feel scared and ashamed almost all of the time.

God is the one constant that has been with me.  The only One who is strong enough and faithful enough to see me through.  And He has put people in my life to act on His behalf.  I don't know exactly what I will be sharing in the coming months.  I probably will never go into any detail; I just feel like the details of what I went through aren't what the world needs to know.  I think the part that matters most is how it changed me - and how I am fighting those changes now.

Thank you all for reading and for your support and encouragement. 

Half a Dozen Roses

When I was growing up, I wasn't one of those little girls who longed for Prince Charming to come my way and sweep me off of my feet.  I didn't need him.  I had my Daddy, and I had my Grampa.  The loved me and cherished me and were the men who taught me what a man is supposed to be.

I was less than six months old on my first Valentine's day.  My Daddy didn't do anything for me - I was a baby, after all.  But my Grampa gave me a fancy card and bought me a single red rose.  He was my very first Valentine... and that is something that nobody else will ever be.  After my dad regained custody of me, when I was about six and a half, he started a tradition of buying me flowers - lots of them - and chocolate and a fancy card.  He did such a beautiful job of showing me I mattered and was loved and that he thought the world of me.  So did my Grampa.  Others did, too, but there is something special about being a little girl and being treated that way.  Something sweet that lasts.

But even though my Grampa was my first Valentine... I was not his.  My Gramma was his Valentine.  Their love is so beautiful, that it makes me cry.  And I don't cry.

On January 31st, 2007, my Gramma was killed in a car crash.  It has been six Valentine's days since then.  Six days that celebrate love.  Six days that my beloved Grampa has had to watch the world celebrate while his heart breaks. 

This morning, I stopped and bought Grampa a dozen pastel roses.  They are his favorite.  Red ones and white ones make him cry - red because that's what Gramma always got him, and white because that is what we adorned Gramma's casket with when we lowered her into the ground. 

I also bought a dozen red roses.  Red for love... that special love that long-lasting couples share.  That love that I saw between him and Gramma after 49 years of marriage.  Six, I gave to him.  One for each Valentine's day since she went to heaven.  He got a little teary when I explained their presence and why there were six red ones.  I didn't tell him about the other six.  I was already having a hard time holding my composure.  I forgot to remove the price tag from the cellophane wrapper.  I don't know if you know this, but at least around here, roses aren't cheap.  Especially not in the morning on Valentine's day.  And especially if you want them to be exquisite.  When he saw the price sticker, he blurted.  I blurt too.  I think I learned it from him.  He was amazed that I would spend "that much money just to say I love you to an old man."  Of course I would.  Of course. 

I left, and before I even put my car in gear, tears were starting to slide down my cheeks.  Hot, salty tears in the cold winter air.

I went home and did the things necessary to prepare for teaching martial arts, and then I took the remaining roses - six perfect red roses - and drove to the cemetery.

I sat in the snow by her headstone, staring at the words inscribed across the top.  "And Jesus said to them, ye must be born again."  I cried.  I said some things that I pray she got to hear... even though I'm not sure exactly what people in heaven do and do not have access to.  Then I took the first rose from the cellophane.  I broke the stem, because her absence has broken so many hearts.  I laid it on the black marble base, and thought about that first Valentine's day without her.  The rawness and shock hadn't faded at all yet that first year.  I took the second rose, broke the stem, and laid it next to the first.  I remembered how that second year, Derek and I had clung desperately to each other and were living in constant fear that something would happen and we would have to know the pain Grampa was feeling.  The third rose, the third stem, for the third year.  That year, Derek and I celebrated.  We celebrated our love.  The fourth rose didn't want to break - the stem bent back and forth several times before it cracked.  A thorn pricked the skin on my thumb, and I bled one bright red drop.  That fourth year, I was starting down the road I am still on.  The road of admitting how broken and how hurt I truly was; not just about Gramma, but about so much.  The fifth rose broke easily.  The fifth year.  The fifth year slipped past; nothing happened on Valentine's day.  I forgot to call my Grampa, and forgot to call my dad.  I didn't even think to say anything to my husband.  It was like that rose stem - stiff and insignificant.

The last rose... the sixth one... made me cry the most.  I cried because this year, I have watched so many who professed profound and everlasting love hurt one another.  I cried because if Derek and I have the sort of love my grandparents had... if we are that way 43 years from now... I cannot even fathom being given such a gift.  I cried because my Grampa is hurting and missing her and loving her.  I cried because I feel like she is the best parts of me.  And those best parts are not gone, but they are hurting.  The best parts are damaged and incomplete.  I cried because I've been trying since the day she died to figure out how to live in a world where she isn't... and I still don't know.  I cried because I actually thought to myself "Gramma will understand how I'm feeling.  I'll just call her..."

Six red roses.  Red roses on black marble, surrounded by white snow.  Broken stems for broken hearts.

And above it all... those words.  "Ye must be born again."

I cried because none of this pain is permanent.  I cried because I am redeemed, and so was she... and so anyone can be, if they will accept it.

Tonight, I have that heavy, tired, blurry-eyed feeling that one gets when one cries too much.  Every once in a while, I pick up my camera and look at the pictures I took.  I may share some day... but for tonight, they are mine.  The moments were mine, the tears were mine, and the comfort God whispered to my heart is mine.

Prayer Request

So, I have a prayer request for you... my faithful readers.

Can you pray for me?  For complete recovery, both physical and mental/emotional?

The physical recovery has slowed down considerably.  I am still moving the right direction, but there is also still a lot of pain each day, and not just in my leg.  I have a very sore back and ribs from the fall, and some internal pain, as well as feeling similar to having the flu (aches and pains randomly coming and going in various muscles and joints).  Also, the scar from my central line is still very sensitive.  As far as my leg, I had what I hope was my last silver-nitrate treatment yesterday.  The silver nitrate is used to "burn" away some of the granulation tissue, since it has been inflamed and tending to grow higher than the edges of the wound.  I believe things will be closed up in another two weeks or so, and then it's a waiting game to see if the scar will need surgical attention.  I am really trying to limit the amount of hydrocodone I take for pain, but it is hard right now.  Just the simple act of walking is painful enough to make me nauseous.  But after six weeks on crutches, I'm just thankful to be on my own two feet.

That brings me to the second half of my request.  When I was still in the hospital, there wasn't any room or time to be very upset about what was happening.  I was confused and a little angry and scared, but so much of the focus was on the moment to moment task of trying to recover.  As time has gone by though, and my body slowly rebuilds, I have been struggling emotionally.  I have tried not to make a big deal of it, but that Monday that I got very sick, I genuinely believed I was dying... and so did most of the medical professionals caring for me.  It was terrifying then, and now that my head is clear and I'm fully conscious, it's even more terrifying.  I don't have a solid answer, and never will, about what exactly caused the sepsis.  While my blood culture did reveal the same bacteria that was grown from each of the four abscesses they operated on, there was nothing about the day in question that should have sent things spiraling so out of control.  That's the scary part.  I keep saying it will never happen again... but how do I know?  If I don't know how or why it happened to start with, how do I prevent it in the future? 

I have actually been having nightmares and things that could almost be described as "flashbacks" about that day.  About laying there with my feet up in the air (I was tilted about 30-35 degrees, head down).  About the agony of the central line going in (no sedation, no local anesthetic because of being too unstable, and everything already really hurt), about the far more intense pain involved with opening up the abscess in ICU, where the lidocaine did nothing because the tissue was too inflamed.  About laying on the CT table and feeling sheer terror as my lungs felt like a hose was letting water fill them, and about the exhaustion that I felt by morning after struggling so hard to just breathe, for so long. 

About the looks on the faces of those I loved.  Especially about that.

So if you could pray that peace would replace the fear and that good memories would replace the bad, and if you could pray for continued healing and the restoration of sound health, I would be very, very thankful.

Thank you everyone.  May you have a very blessed and beautiful Christmas!

My Precious Daughter

My dear Annaliah,
Today is your day.  The day you were predicted to be born.  The day, five years ago, when we expected your arrival.  I had picked out music for you to hear after you were born.  I had started your baby book, with a letter from me, and from your daddy, and from your grandparents.  I had felt you moving, felt the thrill of life that was separate and yet entirely dependent on me.

And then, you went to heaven.  You didn't wait until December 17th.  You met your Jesus months before that.  I know that you are safe, that you are warm and happy and not alone.  It isn't for you that I mourn... it is for the relationship I so desperately wish I had with you.

It is for sticky fingers and maple syrup kisses and sandy hugs.  If you had been granted an earthly life, you'd be around five years old now.  Do you know that at this age, I could start teaching you martial arts?  You'd still be too young for class, but on our own, I could show you things.  You could start learning the lessons that could shape your entire life.

If you were here, you would never lack for hugs and kisses.  Not from me, and certainly not from your daddy.  He would have delighted in you the way that only fathers can, and you would have grown up knowing that you were truly cherished.  If you wanted to marry, you'd have met a good young man, because you would already know what love and respect and honor looked like.

Sweet Anna, on your day this year, I am grieving more than in years past.  I used to think that maybe some day, you'd have a little brother or sister that could live with me here.  Someone who could absorb the love that is burning inside me, breaking my heart.  But I know now, that is not to be.  My body just isn't capable of doing that.  I know you've got your brothers and sisters there in heaven, though.  For that, I'm thankful.  I am glad there is such a place, for you and for them.  I am glad there is a Savior who loves you.

This year, you got to meet one of the Better Men.  You see, Anna, there are regular men.  And then there are good men.  And then there are Better Men.  Jim is a lot like your great-grandma Eileen.  Passionate for his God, gentle and generous in spirit, a person of integrity... and someone who had an unusual love for children.  Saying goodbye to Jim has been a little easier, because even though it hurts me to live here without him, I know that now, you get to be with him.  He isn't family biologically, not here on earth.  But your old enough now to start understanding that sometimes, families aren't made of biology... they are made of faith.  They are made of trust and love and loyalty.  I like to think that you know your family there... and that you know Jim and Roy, and have played with Natalie, and with Judith's babies.  I wonder if you've met my brother?

This year, I am sad as I think of all that I have lost.  All that I have missed.  But that sadness, dear child, is not all consuming.  There is also joy.  How well do you know Billy?  Has he told you how his cousin and her parents pulled me back from the destructive path I was on, and into their own family despite their horrible grief?  Do you and him share a bond - children whose mothers question their own responsibility for the end of your time on earth?  I am joyful, Anna, that you know this young man who changed my life.  Because I do not know him.

I wonder if you've met Grandpa Jean yet.  I remember sitting on his lap, as he gently traced my face with his fingers.  His eyes were unseeing, and yet he said I was truly beautiful.  I asked how he could know, and he said he could see me in his heart.  Anna, that's what I do.  I see you in my heart, and I know you are beautiful.

I'm not coming Home yet, my child.  I thought I was, several weeks ago - and the doctors did too.  But God spared my life, and I am still here on earth.  I have so many things to finish, so much work to do, so many people to love.  I long for heaven, though.  I long to hold you, to see you, to hear your voice.  I long to bow before our King beside you.  You may be physically unreachable, but you are always close to me.  And like Grandpa Jean... I know you are beautiful, because I can see you in my heart.

And I know heaven... heaven is for real.  I'll be there when it's time.  Maybe you can come with Great Gramma and meet me at the Eastern Gate.  When I get there, after Jesus, you are the first person I want to see.

I love you for always.

-Mommy

WOW.

So I actually DO have a reason for having neglected this blog so thoroughly.

Starting mid-September, my leg (the one that had the graft in May of 2010) started hurting more than usual, and getting more warm and swollen.  I had xrays and blood tests and even a bone scan.  Nothing indicated an infection of the bone, but nothing was entirely "normal" either.  We were in the middle of investigating possible causes, while I fought increasing pain.  The following bullet list is a short summary of what transpired after the bone scan.

• Sunday, 10/30/2011
  At some point before this, I acquired a small, innocuous looking scratch on my graft, close to the edge that is stuck to the front of my tibia.  It didn't hurt, didn't look infected, didn't cause a fever... and I have no idea where or when or how I got it, because I can't FEEL the skin where the graft is.  Not sharp pain, that is.  I can feel pressure, sure, and heat, but no sharp sensations.  On Sunday, Derek and I noted and commented on the scratch and what appeared to be a bruise beneath it.  Just a little pink, and a little warm.  I already had an appointment scheduled for Monday, to discuss pain control options.

• Monday, 10/31/2011
  By Monday morning, my shin was huge and hot and red, I felt like I'd been run over by a Mac Truck, I had a fever, and was genuinely sick.  Sick enough that after drawing cultures and other labs, my doctor tucked me into an ambulance and sent me away to the City.  By this point, every breath made my leg feel like it was being smashed.  I was in tears, shaking and sweating.  I will pause here to say this:  Whoever decided that paramedics can start IV's and administer Fentanyl at their discretion... they are something along the lines of "hero" to me.
  
  We got to the Hospital, and I was taken straight to a room.  NO ER, no triage, nothing.  Just up to a room.  More cultures were drawn, another IV line was started, and a circle was drawn on my leg marking the edges of the red, swollen, hot skin.  I was then sent for an X-Ray, which I assumed would come back normal - the last one had.  But no, it did NOT.  It showed fluid and air building up in the deeper tissues, indicative of a fast-moving infection.
  
  Then I met my surgeon, Dr. J.  I had him and his resident assigned to me, another surgeon, Dr. A, as well as Dr. M, Dr. C, Dr. M and Dr. F, plus their interns.  It was a herd.  I wish it could have all been done by just one person.  Less intrusive that way.
  
  7:30 that night I was in surgery.  The operation went fast.  They didn't have to remove anything terribly important, and left the incision (about 6 inches long) open and packed.  I woke up in recover at about 9:00 and I swear, I had NEVER been so miserable in my life.  My temp was up over 104, I was pouring sweat, covered in goosebumps, shivering so hard it was more like convulsions, crying so hard, throwing up, and my leg felt like a combination of fire and being crushed, more intensely than I could comprehend.  It was almost midnight before I was in good enough shape to see my hubby.  They said I was septic, and that's why I was so miserable.  I had a great night nurse who kept my double room just for me, and took care of me so well.  Next morning my roommate arrived and I could. not. do. it.
  
  I don't like PTSD.  I don't like that an other's simple presence when I'm not feeling well or perceive that I am vulnerable, is enough to send me into full-on flashbacks and panic attacks and terror and my brain goes into lock down mode.  There is no reasoning to make it stop, there's no gentle tones or persuasive words.  I spazz out in a world-class manner.  So my good ol' nurse got me moved to a private room in a different unit.  The staff THERE were great too.

• Tuesday, 11/1/2011Tuesday morning, I found out that I was now on Vancomyacin, Rocephin, merepenem, and flagyl.  And I got my PCA pump.  Oh that wonderful device with the stupid nose flap.  Hospital brought me in a laptop to use... mostly it just sat there playing music or shows off of Hulu.    That afternoon, I went back into surgery for more debridement and dressing change.  Late that night, I was taken to a procedure room and sedated for a dressing change.

• Wednesday, 11/2/2011 I continued to complain of pain on the inside of my shin bone - not where the abscess was.  And in my ankle.  It kept getting dismissed.  Temp was staying mostly normal.  They told us the organism was susceptible to the meds I was getting (e. Coli - and NO, I don't know how anyone gets e. coli in their leg, but apparently it's not as far fetched as I thought).  I pointed out a second area of possible infection.  They agreed.
  
  They wanted to unpack, debride, use pressurized water to cleans, and then repack my wound.  And I flipped again.  NO WAY.  Not with me awake!!!  They ran around and around with me about it, until Dr. J finally asked what the real problem was.  I explained the flashback it was conjuring.  And from then forward, it was sleep-city.

• Thursday, 11/3/2011 Thursday morning, I went to a procedure room and was given conscious sedation for my dressing change.  I kept complaining about the area near my tibia that hurt, so they ordered an ultrasound to look for free fluid... and boy howdy, did they find it.  Nice little abscess under the skin but mostly fluid buildup around the bone.  The took me to the OR, knocked me out completely, did a needle aspiration on the new abscess and tried to get the deeper fluid, and then aggressively cleaned the initial incision and performed a delayed closure.  They left a lot of drain tubing in place.

• Friday, 11/4/2011 Was still on the Fentanyl PCA.  Dr. M wanted me to go home... I knew I wasn't ready.  Dr. F, from infectious disease made a plan with my husband - I would go 24 hours with IV fluids but all meds would be oral, unless things escalated, before I would be allowed home.  Surgery liked the plan, but said we should wait till Sunday, so they could pull the drain before I left.  So we left THAT as our plan.

• Saturday, 11/5/2011 1/2 of the drain was removed.  I was taught how to do my own dressing changes, shown what to watch for.  There was some iffy blood work, but they decided it was contaminated by skin, not by actual blood-borne pathogens.  I was off the PCA.  Miserable, but off the pump and ready to go.

• Sunday, 11/6/2011 Sunday, they pulled the rest of the drain, said what to watch for, how to care for things.  At that time, a secondary abscess just medial of my tibia was noted.  It was felt to be small enough that antibiotics alone would address the problem.  After much waiting around, I got to LEAVE.  To go to MY HOME.

• Monday, 11/7/2011 I did my dressing change as ordered - I even filmed it for documentation. The rest of the day, I spent sleeping.

• Tuesday, 11/8/2011
  Because I was uncomfortable waiting a week to see my surgeon for a recheck, my family doc agreed to take a look.  He did so, and called the surgeon.  They had me go NPO immediately in preparation for seeing the surgeon on Wednesday.
  
  Unfortunately, that night, I took a shower.  My first since the surgery.  They had finally given permission and it felt SO SOOO GOOD.  A sponge bath just can't even compare.  About 7:50 PM I was all relaxed and sleepy and fell asleep on the couch.  I woke up screaming at the TOP of my lungs at 8:05.  My head was the WORST pain I can imagine.  Searing and pressure and throbbing with my heart beat and made worse by sound and light and trying to lay flat and turning my head or moving or coughing or talking.I was screaming too much to call 911, and my husband was at work.  They got there though.  I rode lights and sirens (and lots of IV meds pushed and some crazy EKG monitors - finally a nicely documented run of SVT). 
  
  Doctors started talking meningitis, encephalitis, and big scary bad words.
  
  They still don't know what caused it.  Spinal fluid came back indicative of SOMETHING, but non-specific.  CT didn't show any large abnormalities.  So I got me a room with a room mate and the pain and the PTSD fed off each other until they ended up moving me up to the cardio floor, into the only private room left in the hospital. 
  
  They had me on Vanc, Rocephin, and Merepenim.  They switched the Rocephin to Timentin, and the merepenim to Erdepenim.  They also added in Acyclovir.  I had to have two lines again, because the meds couldn't mix together outside the body.

• Wednesday, 11/9/2011
  Finally, things under control enough that I SLEPT.  And SLEPT.  And then SLEPT some more.

• Thursday, 11/10/2011 Home sweet home.

• Wednesday, 11/16/2011 Recheck with the surgeon.  He informed me I needed my secondary abscess drained.  He recommended a standard I&D, under anesthesia.  I consented, and planned for Thursday to be a nightmare.

• Thursday, 11/17/2011 So much for a nightmare.  The day went well.  Operation was really fast and smooth, recovery was smooth, they are hopeful that maybe this could be my last trip to the OR for this problem.
   
• The weekend went well, but the defect was growing worse.  And today, my surgeon has prescribed honey.  Like from bees.  That's what I put in the wound.  I thought he was crazy.  But it turns out it's more widely known than I thought.

So THAT, is where I've been.  If folks have an interest, I'll put together a picture tour similar to what I did with my hand for you all that time.  But right now?  I am going to SLEEP.

Not Me Monday

Long ago, in a frozen and windy land, a person named MckMama decided to throw a large blog party.  The purpose of the party was to help those who participated have a chance to be honest, telling about those things that they might otherwise try to hide.  In sharing, there was a decrease in guilty feelings and an instant and significant increase in laughter.

So, in honor of this weeks Not Me Monday, here I go.

In the last week, the following things most certainly did not* happen.

I did not spend the entire day Tuesday with the best friend a person could ever ask for, and that best friend's mother.  The purpose of the trip was not to drive a couple hours to see a specialist regarding a not good at all diagnosis, and to receive less-than-good news about her progress (or lack there of).  But if I did do that, I would want you to pray with everything you've got for my friend, Elizabeth.  Specifically, I would want you to pray that medication would begin to be effective, and that the damage to her vision would somehow be reversed.

On that same imaginary trip, I starved.  I did not accompany them to an extraordinarily delicious Mongolian grill, wherein people are allowed to compile their own choice of ingredients, and then surrender them to the "Grill Warriors" who proceed to make steaming hot plates of whatever you want and present them to you straight off the grill.  I did not fail to believe my friend when she said it was really easy to load so much onto a plate that you could only eat one or two at most.  And I did not end up leaving half of my second plate, on the plate.  I haven't been trying to find an excuse to go back ever since, either.

Since I'm on a roll with this imaginary trip I took... after dinner, my friend and I and her mother did not find ourselves at a well known department store, trying out the display beds.  By laying on them.  We did not discover that some refrigerators have "MEAT FISH STORAGE" drawers and find it hilarious.  We did not laugh until tears came out of our eyes as we tried to come with a way to ask why do you have AC adapters inside your display dresser, and what exactly do the DO for said dresser, since we knew we couldn't ask it with a straight face.  We did not marvel at treadmills, we did not sit in lawn chairs, we did not spend 30 minutes in a tiny kitchen store mocking some of the more... unusual devices.  We did not laugh and smile and enjoy our time far more than seems possible on a trip of that location.

Not me.  Not them.  Not us.

I did not work at a Samurai Sword Show for four days.  And while in the car on the way to the show I did not work at, I did not make a phone call to the biggest, most popular news station in that area to inquire whether or not they would be present to do a news piece on the show.  When the man answered, I did not say "Hi, my name is Jenn, and I am calling to see if you will be sending any reporters over to the Schlamurai Swow Shord," or something very similar.  I did not hear the jumble of words and lose the ability to speak while I laughed to myself.  And the reporter who had taken my call did not fall silent for a solid five seconds, and then crack up laughing so hard I suspect he had to lean on something for support just to keep from falling over, and gasp out "Ma'am, I am sorry.  Could you please repeat what you just asked me?  And then tell me what you meant to ask me?"  It did not strike me as so funny that for the rest of the weekend, all I needed was a little reminder and I would laugh until my entire BODY was bright red.  No, not me.  Because I never mix bits and pieces of words together to form various other words.

I also did not consume "schlockett" or blow "Blubblows" as a young child.

I did not consider the idea that I was truly losing my mind as I stood on the 12th floor of the convention center, noticing the floor pulsating and moving beneath my feet and hearing the sounds of loons drifting down the highway.  And I was not relieved when I realized everyone could feel the moving floor, nor was a relieved when I realized that the PA system was responsible for the loon sounds.   All day and all night.  Every day.  And every night.

I did not find it disproportionately funny to be working at a SWORD SHOW, where there really were sharp, shiny, big Samurai swords everywhere, while in the lobby, a large group was meeting to celebrate the beauty of organ donation and get more people to commit to it.  Because asking someone to donate organs while surrounded by signs announcing the presence of hundreds, maybe thousands, of swords and people of the sort that actually enjoy collecting these swords, is not ironic.  Or funny.

I did not know yesterday that I really was starting to feel crummy and I did not wake up this morning with a fever and tonsils swollen so much that they are squished together and glands so sore and swollen that I can't turn my head.  And doing so, and cancelling all plans for the day in order to stay wrapped in a blanket and not move, did not make me wonder what nurses think when you call and cancel a bone scan because you feel too crummy to come in and get tested to see if the bone in your leg is infected.

Lastly, I am not struggling to find things to share for Not Me Monday, because I haven't gotten out of the habit and I also have not had more stress than laughter recently.

*By did not I actually mean they really did.  Just to clarify.  There are probably witnesses willing to testify that all these things that did not happen, actually did happen. 

Silence.

You may have noticed, if you're particularly observant, that there has been nothing aside from scheduled posts, for a while now.

I've been silent.

My whole life, I have wondered at the tradition known as "a moment of silence."  It always seemed awkward, it seemed unnatural and unhelpful.

Then one of the Better Men... No, one of the BEST Men... threw off his chains and hurts and went to heaven.  It was unexpected, to say the very least.  It was tragic.  It was heartbreaking.  I wanted so badly to talk about it here, but... for once, I understood the silence.  There are not words.  What do you say about a man who is being buried not many years after his son, not many years after his granddaughter?  Do you rejoice because Jim and Roy and Natalie are together?  Do you rejoice because he has children and grandchildren there who never took a breath on this earth, and now he can know them?  Do you rejoice because He is home and he is whole?

Yes.

And for so many... you mourn.  Not for him.  But for those who have the task of learning how to live now.  How to exist in a world where he... isn't.  For the memories that won't be made. 

My heart hurts so much, for so many...
For his mother.

For his wife Rachel.

For his children and their spouses:
Eric and Toni, and their children Ethan, Katie, Emily, and Amanda
Roger and Amber, and their sons Evan and Gunner
Karl and Iris, and their son Israel
Marilyn and Ivan, and their children Trevor, Nicole, Devin, Wyatt, and Keegan
Judith and Craig, and their sons Luke and Ryan

For Carmen, who was his son Roy's wife, and their children Austin, Angel, and Garrett

And for so, so many more.

But I confess... tonight, the person on my heart the most is his youngest daughter, Judith.  She is kind, and genuine, and has ready and quick smile, just like her daddy.  Sparkling green eyes and a passion for her God and for her children.  Gentle and humble. 

It's not that Judith is the only one hurting... it's just that she is the one most like me.  The one whose pain I can understand the best. 

This song is for her.  Because my words are all used up, and I need some time in silence.


Daddy Hung The Moon
~Jeff and Sheri Easter

We made the perfect pair
The best of friends
Daddy and me
I'd be walking on air
Every time he'd smile
And say he was proud of me
We said our prayers
He'd tuck me in then
I'd look in his eyes
I knew his love could fill an ocean
And light up an endless sky

Daddy hung the moon
Out-shined the stars
Put a song inside my heart
Daddy hung the moon
Oh I know it must be true
His smile could light the world
Of this green-eyed daddy's girl
God may have made the stars
But daddy hung the moon

His favorite words were
"I love you"
He always said
There was nothing I couldn't do
There's a world of hurt out there
Little boys and girls
Who've never known love like I do
If I had one wish
I'd wish to make it right
Oh I'd give them all a daddy
And make him just like mine

Cause daddy hung the moon
Out-shined the stars
Placed a song inside my heart
Daddy hung the moon
Oh I know it must be true
His smile could light the world
Of this green-eyed daddy's girl

God made the world
In seven days
The sun to shine and the clouds for rain
But when He made the sky
He saved one part for a little girl
Who knew in her heart

Daddy hung the moon
Out-shined the stars
Placed a song inside my heart
Daddy hung the moon
Oh I know must be true
His smile still lights my world
And I'm still my daddy's girl.
God may have made the stars
But daddy hung the moon

NICIAW - Endometriosis

My name is Jenn.

The invisible, chronic illness I live with is Endometriosis, stage IV.  Endometriosis, for me, is a disease in which tissue similar to the tissue that normally lines a uterus, grows elsewhere.  In my case, that means my ovaries, my fallopian tubes, my bladder (inside and outside), my large intestine, my small intestine, all the spaces between pelvic structures, as well as my kidneys, ureters, my liver, spleen, diaphragm, and right lung.  Each time my body cycles, those abnormal growths, which cause pain and problems by simply being there, start to bleed (just like having a period).  Only they bleed heavily and intensely, and it drains me of all energy and makes me very ill.  Not to mention the pain.  The bleeding causes inflammatory responses which cause the formation of adhesions and scar tissue, which then creates more places for the endometriosis to grow, and causes pain and problems of its own.  I also get cysts within my ovaries and what's left of my tubes, that get very very large and then rupture, causing loss of blood and bodily fluids, abdominal swelling, and sheer agony.  The adhesions that formed prior to my last surgery effectively turned my abdominal cavity into a solid mass.  There were new arteries that had grown and the adhesions weren't the typical filmy bits of scar tissue, but were thick, meaty tubes of tissue.  My last surgery could not be completed in one procedure, and the second half had to be completed two months later.

I was officially diagnosed following a laporoscopy on March 23, 2007. 
But I started having symptoms when I was 13 and had my first ruptured ovarian cyst.  The ultrasound revealed that the cyst was denser than typical "luteal or hemorrhagic" cysts, and the word "endometriosis came up in conversation.  It was dismissed as I was far too young.  At the age of 18, I had my appendix removed as well as a large ovarian cyst that I was told was called a "chocolate cyst."  At the age of 21, I had to have a biopsy done on my bladder due to the endometriosis that was growing there.  And yet, no diagnosis was offered.

The biggest adjustment I’ve had to make is realizing I face life-long pain and knowing that conceiving without medical assistance is no longer possible, and that at the age of 27, I have reached the end of my ability to bear children.

Most people assume that I still have time to have children, but the endometriosis has destroyed so much of my body that I am out of time.  If we get an opportunity this year to try, it might work.  Otherwise... we are done.  I am young, but that doesn't mean I have time.  They also assume that Endometrios just means I have painful periods and probably sore ovaries and tubes.

The hardest part about mornings are not knowing if I will be able to stand up when I get out of bed.  Will the pain be so severe that I cannot stand up?  Will I throw up?  If I do, will it be vomit or blood?  What about my lung?  Am I going to cough up blood?  And the adhesions - will one tear free today, causing intense pain and bleeding, possibly even landing me in the hospital?

A gadget I couldn’t live without is my electric blanket.  Sometimes, when I'm bleeding internally, I get anemic.  And so very, very cold.  The electric blanket helps me stay warm, and keeps me from shivering (which hurts even more).

The hardest part about nights are when I am so tired but I am in so much pain that I can hardly make myself breathe, never mind fall asleep.

Each day I take hydrocodone, naproxen, and elmiron pills, and at night I need ambien and ativan to help me sleep.  I also take prenatal vitamins, fishoil, and evening of primrose oil. (No comments, please)

Regarding alternative treatments I have tried so many.  Supplements, dietary changes, visualization for pain management, faith... all of those things have come into play, and have helped... a little.  Also, I have done an experimental run of chemotherapy, which was effective in causing me to loose about 1/2 of my hair and while the disease did not progress, there was no remission.  And as soon as the regiment was over, it started growing even faster than before.

If I had to choose between an invisible illness or visible I would choose invisible.  I don't like sympathy, I don't like being the center of attention, I don't like "Aw... you look awful."  But at the same time... there are days when I feel like I am being shredded from the inside out and someone will say "You look really great" and I will think to myself "NOT.POSSIBLE.GO.AWAY."

Regarding working and career, it has destroyed my career.  Do you know people don't seem to hire you when you openly admit that there are days you can't get out of bed, unpredictably.  And you have surgery 2-3 times each year, and each time could mean up to 1 month away from work, plus if you get a period you'll be missing at least a week for that, and if you ovulate, you might get a cyst requiring up to two weeks in bed.... they say they are equal opportunity employers, but.... how can anyone expect to be hired after disclosing such information?  And I feel like it is the opposite of integrity to withhold it.

People would be surprised to know how much this disease really, really hurts.  And how discouraging it can be.  But life is still beautiful, still a gift, still something to cherish and live as fully as possible.

The hardest thing to accept about my new reality has been admitting that I really do hurt.  I really am in pain, and I really could use your help.

Something I never thought I could do with my illness that I did was... well, we're still working on this one.  I want to have a baby.  I want to wait, but I can't.  If I'm going to do it, it's got to be now.  We will see if this happens.

The commercials about my illness... there are commercials about endometriosis?  I've never seen any.

Something I really miss doing since I was diagnosed is dreaming about future babies - about finding out that we'd gotten pregnant this month.  And I miss being able to be intimate with my husband without pain.

It was really hard to have to give up the idea that our children could be conceived, carried, and birthed 100% naturally.

A new hobby I have taken up since my diagnosis is blogging, actually.

If I could have one day of feeling normal again I would spar until my legs quit working, and then lay on my stomach on the beach and trace designs into the sand.  To end the day, I'd be painlessly intimate with the person I love most.

My illness has taught me to take care of myself.  To not say "I can" when I can NOT.  To ask for help, and to not be ashamed when I need a time out.

Want to know a secret? One thing people say that gets under my skin is "If it's God's will for you to have a baby, you will... at just the right time."

But I love it when people give me a big hug and say "I remember" on December 17th, which is the day our little girl was supposed to have been born back in 2006.

My favorite motto, scripture, quote that gets me through tough times is,
   "O Lord, My God, when I in awesome wonder
    Consider all the works Thy hands have made
    I see the stars, I hear the rolling thunder
    I see Thy pow'r throughout the universe displayed...

    Then sings my soul, my Savior God to Thee
    How great Thou art, how great Thou art!"

When someone is diagnosed I’d like to tell them, it's a tough road.  But not a hopeless one.  Look for the beauty in your life... because it is still there.  And now, it can mean even more than it ever did.

Something that has surprised me about living with an illness is how easy it is to get depressed and self-centered because of it.

The nicest thing someone did for me when I wasn’t feeling well was tell me to lay back down and rest.

I’m involved with Invisible Illness Week because I support others who have "invisible illnesses."  I know many people who silently suffer, and I want to give them a chance here to be heard.

The fact that you read this list makes me hope maybe it touched something in you that will help either you or someone you love.