This is from Smurf.
1. The illness I live with is: Pulmonary Fibrosis and bronchiectasis.
2. I was diagnosed with it in the year: 2007.
3. But I had symptoms since: some symptoms present from birth which developed into above conditions.
4. The biggest adjustment I've had to make is: Regular hospital treatments/stays.
5. Most people assume: I have a bit of a cough, but otherwise am fit and healthy.
6. The hardest part about mornings are: Breathing.
7. My favorite medical TV show is: None, avoid them.
8. A gadget I couldn't live without is: Portable nebuliser that works in the car.
9. The hardest part about nights are: Breathing
10. Each day I take 30-57 pills & vitamins.
11. Regarding alternative treatments I: Try anything.
12. If I had to choose between an invisible illness or visible I would choose: Invisible. on the rare occasions I wear oxygen nasal tubes in public I can't bare the looks of pity I get.
13. Regarding working and career: I am lucky to have an understanding employer
14. People would be surprised to know: I am scared about my condition and when I wear lipstick, its to hide that my lips are blue through low oxygen.
15. The hardest thing to accept about my new reality has been: Life expectancy and transplantation prospect.
16. Something I never thought I could do with my illness that I did was: Snorkel in the sea
17. The commercials about my illness: I don't know.
18. Something I really miss doing since I was diagnosed is: Not worrying about medication and correct dosages and times.
19. It was really hard to have to give up: The partying lifestyle
20. A new hobby I have taken up since my diagnosis is: None
21. If I could have one day of feeling normal again I would: Go scuba diving and run everywhere
22. My illness has taught me: To take each day as a new one
23. Want to know a secret? One thing people say that gets under my skin is: I thought you were a smoker coughing like that.
24. But I love it when people: Don't underestimate my capabilities when they know of my condition.
25. My favorite motto, scripture, quote that gets me through tough times is: 'Thats life'
26. When someone is diagnosed I'd like to tell them: Don't just see a death sentence
27. Something that has surprised me about living with an illness is: The amazing people I have met along the way.
28. The nicest thing someone did for me when I wasn't feeling well was: Arrange a surprise birthday party when I was in hospital- everyone on the ward got involved and had fun.
29. I'm involved with Invisible Illness Week because: the saying 'don't judge a book by its cover' came to mind when reading about it.
30. The fact that you read this list makes me feel: Heard
I am a Christian. I am a wife. I am a daughter. I am a friend. I have babies in heaven. I take pictures. Love to write. I strive to show compassion.
Derek is also a Christian. He is a husband - to me. An amazing husband. He loves intensely. Laughs freely. He is strong. I am amazed when I consider that he chose ME. I love him. He loves me.
This is my Gramma. Eileen. Of everyone I have ever known, she is the one I desire to be like. She was wildly compassionate. Generous. A woman of integrity. Goofy. Cute. My hero. She is in Heaven.
Bayleigh is intense. She is small. She is beautiful. Sweet. Wild. Mischevious without limits. And she chirps.
Furbis is the epitome of catness. He is handsome. Big. Sweet. Dangerously intelligent. Strong. He breaks things. And talks.
Calliah is special. Furbis chose her. She is sweet. Not very smart. Funny. Pretty. Puts her toys in water. And the more she loves you, the harder she bites.
Izzy is super sweet. She's pretty. Passionate about playing. She licks things. She doesn't talk much. Snuggles a lot. And sleeps on my head.
1 comment:
Great q &a
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