Wednesday, September 14, 2011

NICIAW - MS and/or Lyme Disease

From Liz
1. The illness I live with is: Either Lymes Disease or Multiple Sclerosis. Not sure.

2. I was diagnosed with it in the year: January 2011

3. But I had symptoms since: worst symptoms in December 2011

4. The biggest adjustment I’ve had to make is: learning what I can and can’t do

5. Most people assume: that I am perfectly healthy

6. The hardest part about mornings are: knowing I have to get up and give myself a shot, every day!

7. My favorite medical TV show is: Greys anatomy

8. A gadget I couldn’t live without is: Autoject 2 that helps with the injections so I don’t actually have to stick the needle in.

9. The hardest part about nights are: Sometimes getting to sleep

10. Each day I take _0_ pills & 1 vitamins. (No comments, please)

11. Regarding alternative treatments I: have seen a homeopathic doctor for the lymes.

12. If I had to choose between an invisible illness or visible I would choose: visible

13. Regarding working and career: been trying to figure out things that I will be able to do

14. People would be surprised to know: that I am still as active as I ever was. Besides my eyes and fatigue, it hasn’t slowed me down a whole lot

15. The hardest thing to accept about my new reality has been: the fear of what the future might be

16. Something I never thought I could do with my illness that I did was: Continue being a wildland firefighter.. but have kinda decided to move on to something less strenuous.

18. Something I really miss doing since I was diagnosed is: having the freedom to eat whatever I want because of the drugs ive been taking for the Lymes

19. It was really hard to have to give up: Sugar

21. If I could have one day of feeling normal again I would: not want it to end and make the best of it

22. My illness has taught me: To be patient and try to do the best I can and appreciate the people around me.

24. But I love it when people: are just willing to listen to my complaints

26. When someone is diagnosed I’d like to tell them: it sucks, but just take things day by day and learn how you are going to move on and live with it.

27. Something that has surprised me about living with an illness is: how quickly symptoms show up and how long it takes for them to go away.

28. The nicest thing someone did for me when I wasn’t feeling well was: Wasn’t Able to drive for a while this summer because of my eyes acting up, so My mom drove to Northern Minnesota to pick me up, and my Father in Law took me back

29. I’m involved with Invisible Illness Week because: Its not fun not feeling good, and having vision problems for months at a time and no one else can see it.

30. The fact that you read this list makes me feel: Happy to know someone cares

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