Tuesday, August 30, 2011

National Invisible Chronic Illness Awareness Week

I am reposting this because I've received several entries already, but I don't want folks to forget - there are still two weeks left.  Thank you all so much.

Please visit This Link to learn more about National Invisible Chronic Illness Week.

Thousands, millions even, of people suffer with invisible illness.  As months, weeks, and years go by, we learn to stay silent, to quit complaining, to "toughen up."  We learn to not ask for support or help.  We get tired of being  a burden.  Sometimes, we find ourselves dreading the next person who says "But you look just fine."  This year, from September 12-18th, I will be publishing as many stories as are submitted to me.  You can follow this checklist, or you can write it in any other format you choose.  But try to view it as an opportunity to show the world what it is like to be you.  It's important to me this year, to give my readers a voice.  You can email me at kyukidojen@hotmail.com and I will gladly post on your behalf.  Please include what you want me to call you in the post dedicated to you, and as well as you can, answer the following questions.  It is time to see just how NOT alone we really are.

1. The illness I live with is:

2. I was diagnosed with it in the year:

3. But I had symptoms since:

4. The biggest adjustment I’ve had to make is:

5. Most people assume:

6. The hardest part about mornings are:

7. My favorite medical TV show is:

8. A gadget I couldn’t live without is:

9. The hardest part about nights are:

10. Each day I take __ pills & vitamins. (No comments, please)

11. Regarding alternative treatments I:

12. If I had to choose between an invisible illness or visible I would choose:

13. Regarding working and career:

14. People would be surprised to know:

15. The hardest thing to accept about my new reality has been:

16. Something I never thought I could do with my illness that I did was:

17. The commercials about my illness:

18. Something I really miss doing since I was diagnosed is:

19. It was really hard to have to give up:

20. A new hobby I have taken up since my diagnosis is:

21. If I could have one day of feeling normal again I would:

22. My illness has taught me:

23. Want to know a secret? One thing people say that gets under my skin is:

24. But I love it when people:

25. My favorite motto, scripture, quote that gets me through tough times is:

26. When someone is diagnosed I’d like to tell them:

27. Something that has surprised me about living with an illness is:

28. The nicest thing someone did for me when I wasn’t feeling well was:

29. I’m involved with Invisible Illness Week because:

30. The fact that you read this list makes me feel:

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1 comment:

Katie said...

OK-- so I didn't email all the answers, but i really thought about them and I really appreciate how you get to the heart of the matter when you write and make others think. I truly believe (as I've said before) that you are an amazing writer and would add to that- you should start a memoir while things are fresh. Even if you didn't publish for public. Your kids (I know that you will some how have be it "natural," snow babies, adopted, fostered, etc) would really benefit from knowing the things that you share with all of us.